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Signed in as:
filler@godaddy.com
Various Dates and Times
Our monthly educational and social program series - LIVING OUR BEST LIVES WITH DUCHENNE - helps families connect, learn and share to be able to live their BEST lives possible!
Various Dates and Times
CureDuchenne has an events section on their website where you will find community events and webinars, Industry webinars, workshops, educational events and webinars, fundraising events and information about the annual FUTURES conference.
Various Dates and Times
Jett Foundation has a section on their website with information about virtual programs and events, community webinars, Camp Promise, Porch Nites, family workshops and more!
Various Dates and Times
PPMD has an events section on their website where you will find fundraising events as well as information for the annual advocacy conference and annual conference.
November 15, 2025 in Dallas, Texas
Renaissance Dallas Hotel
2222 N Stemmons Fwy, Dallas, TX 75207
Spend a full day connecting, learning, and sharing with others who truly understand life with neuromuscular disease. The MDA Engage Symposium brings together individuals living with neuromuscular disease, caregivers, clinicians, and experts for in-person sessions designed to inform, support, and inspire. From condition-specific discussions to real-life topics like navigating life transitions or planning for independence, you'll leave with information you can actually use — and connections that last well beyond the weekend. Throughout the day, you can explore resources, talk with experts, and be part of meaningful conversations that reflect your experiences and needs. We will end the evening with a Networking Reception featuring hors d'oeuvres, activities, and time to meet others in the community.
*There is no cost for the community to attend the MDA Engage Symposium.
November 22, 2025 in Stanford, California
Li Ka Shing Learning and Knowledge Center
291 Campus Drive, Stanford, CA 94305
Join us for this dynamic, in-person educational event for people living with neuromuscular disease and their caregivers. Offering both disease-specific learning and daily living learning sessions, there is something for everyone. Attendees will learn actionable information to help them make informed decisions about their, or their loved one’s, care. Attendees will also have the opportunity to connect with one another and to explore exhibitor booths.
*There is no cost for the community to attend the MDA Engage Symposium.
March 8 - 10, 2026 in Washington, DC
Check PPMD's website for information.
March 8 - 11, 2026 in Orlando, Florida
The MDA Clinical and Scientific Conference will be held at the Hilton Orlando in Orlando, Florida.
Memorial Day Weekend - May 21 - 24, 2026 in Orlando, Florida
The CureDuchenne FUTURES National Conference is an annual event focused on bringing education, connection, and hope to the entire Duchenne community. The 2026 Conference will be held in Orlando, Florida at the JW Marriott Grande Lakes Resort.
June 25 - 27, 2026 in Orlando, Florida
PPMD's Annual Conference will be held in Orlando, Florida at Disney's Coronado Springs Hotel.
September 29 - October 3, 2026 in Hiroshima, Japan
Save the date and watch for updates for the 31st annual World Muscle Congress.
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