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EVENTS

Best Day Ever Foundation Events

Various Dates and Times
Our monthly educational and social program series - LIVING OUR BEST LIVES WITH DUCHENNE - helps families connect, learn and share to be able to live their BEST lives possible!

Best Day Ever Events Page

CureDuchenne Events

Various Dates and Times
CureDuchenne has an events section on their website where you will find community events and webinars, Industry webinars, workshops, educational events and webinars, fundraising events and information about the annual FUTURES conference.  

CureDuchenne Events Page

Jett Foundation Events

Various Dates and Times 

Jett Foundation has a section on their website with information about virtual programs and events, community webinars, Camp Promise, Porch Nites, family workshops and more!

Jett Foundation Events Page

PPMD Events

Various Dates and Times 

PPMD has an events section on their website where you will find fundraising events as well as information for the annual advocacy conference and annual conference. 

PPMD Events Page

MDA Engage Symposium - Dallas

November 15, 2025 in Dallas, Texas

Renaissance Dallas Hotel
2222 N Stemmons Fwy, Dallas, TX 75207
 


Spend a full day connecting, learning, and sharing with others who truly understand life with neuromuscular disease. The MDA Engage Symposium brings together individuals living with neuromuscular disease, caregivers, clinicians, and experts for in-person sessions designed to inform, support, and inspire. From condition-specific discussions to real-life topics like navigating life transitions or planning for independence, you'll leave with information you can actually use — and connections that last well beyond the weekend. Throughout the day, you can explore resources, talk with experts, and be part of meaningful conversations that reflect your experiences and needs. We will end the evening with a Networking Reception featuring hors d'oeuvres, activities, and time to meet others in the community.  


*There is no cost for the community to attend the MDA Engage Symposium. 

MDA ENGAGE SYMPOSIUM - DALLAS 2025

MDA Engage Symposium - Stanford

November 22, 2025 in Stanford, California

Li Ka Shing Learning and Knowledge Center
291 Campus Drive, Stanford, CA 94305 


 Join us for this dynamic, in-person educational event for people living with neuromuscular disease and their caregivers. Offering both disease-specific learning and daily living learning sessions, there is something for everyone. Attendees will learn actionable information to help them make informed decisions about their, or their loved one’s, care. Attendees will also have the opportunity to connect with one another and to explore exhibitor booths. 


*There is no cost for the community to attend the MDA Engage Symposium. 

MDA ENGAGE SYMPOSIUM - STANFORD 2025

PPMD Advocacy Conference 2026

March 8 - 10, 2026 in Washington, DC


Check PPMD's website for information.

PPMD ADVOCACY CONFERENCE

MDA Clinical and Scientific Conference 2026

March 8 - 11, 2026 in Orlando, Florida


The MDA Clinical and Scientific Conference will be held at the Hilton Orlando in Orlando, Florida. 

MDA CLINICAL AND SCIENTIFIC CONFERENCE

CureDuchenne 2026 FUTURES National Conference

Memorial Day Weekend  - May 21 - 24, 2026 in Orlando, Florida


The CureDuchenne FUTURES National Conference is an annual event focused on bringing education, connection, and hope to the entire Duchenne community. The 2026 Conference will be held in Orlando, Florida at the JW Marriott Grande Lakes Resort. 

CUREDUCHENNE FUTURES CONFERENCE

PPMD Annual Conference 2026

June 25 - 27, 2026 in Orlando, Florida


PPMD's Annual Conference will be held in Orlando, Florida at Disney's Coronado Springs Hotel.

REGISTER FOR PPMD ANNUAL CONFERENCE 2026

World Muscle Society Congress 2026

September 29 - October 3, 2026 in Hiroshima, Japan


Save the date and watch for updates for the 31st annual World Muscle Congress.

WORLD MUSCLE SOCIETY CONGRESS

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